Who are you?
- Hello! My name is Morgan. I’m 25 and I’m from Charlotte, NC.
- I write about my experiences with HKPP and other things that people with chronic illnesses may be able to relate to
What does HKPP stand for?
- Hypokalemic/Hyperkalemic Periodic Paralysis (it’s a mouthful so it’s easier to just use HKPP for short)
- Take a look at what is periodic paralysis for more info
How long have you had HKPP?
- In 2012 I was diagnosed with Hypokalemic Periodic Paralysis at Duke Children’s Clinic. I was born with it, but did not know I had it until I started experiencing symptoms at 12 or 13. No one else in my immediate family ever experienced any of the symptoms or signs of HypoPP, outside of one distant cousin.
What is it like to have an episode of paralysis?
- Unpleasant. I wrote about it recently here
Does it hurt?
- No. When I have mytonia in my left leg due to an abortive attack it is uncomfortable because my muscles tighten up. Sometimes I also get achy but it never hurts when I am having paralysis.