Here I write a lot of thoughts and experiences that I struggle to express to others. This site is a way to help provide visibility for invisible disabilities.
Why Chronic Realism?
You are valid and your experience is real
I’ve chosen the name Chronic Realness for a couple of reasons. Having a chronic illness, or other types of invisible disabilities, can make you feel invalid and invisible. Ableist society tends to ignore us and our experiences, our needs. In some ways, we are told that it is impossible for you to experience the symptoms that you have, the condition that you have. That it’s not real, that it’s in your head, that it’s just a result of a mental illness like anxiety or depression. I’m here to tell you, it’s all real.
Having a chronic illness means that you have to be real in a number of ways. Real meaning straight up, straight forward, honest, kind of blunt. It means being real with those around you, whether it’s setting boundaries based on what is do-able for you or advocating for yourself in important situations. Most importantly, it means to be honest with yourself when you need a break, need some help, or are accepting your disability for what it is.
Realism to me means authenticity. More specifically, being authentic to who you are. I want this site to be a representation of being true to who I am as a black, disabled, chronically ill, person. There aren’t many representations of people with invisible disabilities and that a lot of people aren’t quite fully aware of what this experience is like. I think it is important for us to feel seen and help others understand what is is like to have a disability that cannot be seen. Thus, chronic realism.